A Heartbreaking Choice
For those parents who choose to interrupt their pregnancies after poor prenatal diagnosis, there is very little in the way of support programs. With this site and the dedication of courageous parents willing to reach out, we hope to create a safe haven of encouragement and validation. aheartbreakingchoice.com
A Place to Remember
Committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby. A forum in a bulletin board type format is available. aplacetoremember.com
Center for Loss in Multiple Birth (CLIMB), Inc.
By and for parents throughout the United States, Canada and beyond who have experienced the death of one or more, both or all their children during a twin, triplet or higher multiple pregnancy, at birth, or in infancy or childhood…and caring others. They offer a contact network and have resources for special situations (pregnant now after a multiple has died in-utero, for example). They also provide a newsletter, and you may request it via email. Based in Alaska. P.O. Box 91377, Anchorage AK 99509, 907/ 222-5321
E-mail:climb@pobox.alaska.net.
climb-support.org
The Compassionate Friends
A national parent-to-parent support group. LOTS of valuable information at this site for parents who have lost children of any age under any circumstance. There is information on local chapters available as well. “The mission of The Compassionate Friends is to assist families in the positive resolution of grief following the death of a child and to provide information to help others be supportive.” compassionatefriends.org
GriefNet
GriefNet is an Internet community of persons dealing with grief, death, and major loss. griefnet.org
Hannah’s Prayer
Hannah’s Prayer desires to provide Christian based support and encouragement to couples around the world who are struggling with the pain of “fertility challenges” including infertility, pregnancy loss or early infant death. They also have a newsletter. hannah.org
Hygeia
Online Journal Hygeia is listed as “An Online Journal for Pregnancy and Neonatal Loss A New Resource for Women’s Health and Healing.” Dr. Berman intends Hygeia to be an interactive online journal with an approach to healing via three avenues. drberman.org
Information For Genetic Professionals
Information on genetics. kumc.edu/gec/geneinfo.html
Losing Lucy and Finding Hope
This is our story of losing our daughter, Lucy, finding hope in God, and trying again. http://losinglucyandfindinghope.com
M.I.S.S. (Mothers In Sympathy & Support)
The mission of M.I.S.S. is to allow a safe haven for parents to share their grief after the death of a child. MISS provides support to parents enduring the tragedy of stillbirth, neonatal death and infant death from any cause including SIDS, congenital anomalies, trisomy 13. Grief education for parents and professionals is our main focus. Web Site: missfoundation.org
E-mail: kim@missfoundation.org
Phone: 209-725-9241
Missing Grace Foundation
This site has an abundance of material to help bereaved parents in the grieving process. It provides many valuable resources including:
– Personal online support
– Medical information to answer questions related to the cause and future prevention of stillbirth
– Information on ways to take action in your state to promote stillbirth awareness
– Descriptive lists of national and international support groups
Missig Grace wants parents to be well informed so they can take preventative measures and a proactive role in their pregnancy. Grace’s web site hopes that they will offer comfort, hope and encouragement for those who have been afflicted by the pain of losing a baby at any stage of development. MissingGrace.org
Mommies Enduring Neonatal Death M.E.N.D.
is a Christian not-for-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death and offer a way to share experiences and information through meetings, the bi-monthly newsletter. Web site: mend.org
MyMolarPregnancy.com
A website providing information, personal stories, and support for women who have lost a child due to molar pregnancy, also known as gestational trophoblastic disease. In this rare condition, malignant cancer cells begin to grow in the uterus at conception (complete molar) or thereafter (partial molar). The pregnancy must be terminated immediately and the woman must undergoing monthly monitoring for up to a year to prevent the return of the cancerous tissue, during which time she cannot try to get pregnant again. Thus, this condition results not only in the grief of loss but also in the fear of cancer. mymolarpregnancy.com
Online Directory of Genetic Resources
The Alliance can also provide referrals for conditions not listed on this page. If you cannot find the information you are seeking, or if you have any questions or comments, please contact the Alliance by phone at 1-800-336-GENE. http://www.geneticalliance.org
Perinatal Loss
A WEB catalog of bereavement resources that include beautiful, tiny urns to hold a baby’s ashes, personalized announcement cards, and special albums for keeping precious memories (such as photographs, a lock of hair, footprints, etc.), Many handcrafted items that can help you honor your baby’s short life. griefwatch.com
Portraits by Dana
Portraits by Dana offer’s gently drawn pencil portraits from photographs that can be customized to each individual family. I also offer angels prints from my Wings Collection and Certificates of Life to those unfortunate families who were not able to obtain a legal birth certificate. As you know, the hospital photos are not ones that most families feel comfortable displaying in their homes. I can give these families a drawing of their ‘little one’ sleeping peacefully minus any tubes, bruising or hurts. portraitsbydana.com
Pregnancy Loss
A website devoted to miscarriage medical information and support. Medical information includes questions and answers concerning the causes, symptoms, diagnosis, treatment and recovery involved in the stages of a misscariage. A moderated bulletin board is also featured to share thoughts and feelings with others, as well as other features to assist in the healing process. pregnancyloss.info
SHARE Pregnancy and Infant Loss Support, Inc.
SHARE is a not-for-profit nondenominational organization providing support to those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth or newborn death. All information packets, correspondence, and support are free of charge for bereaved parents. www.nationalshare.org
SIDS-Western Australia/SANDS
A support group based in Australia for parents who experience loss from miscarriage, stillbirth, neonatal death, SIDS – Suddent Infant Death, and children who have died from any cause up to the age of two. Features poetry, grief tips, subsequent pregnancy information, and much more. sands.org.au
SPALS: Subsequent Pregnancy After Loss
SPALS is a warm and compassionate group of people who have experienced the loss of a child due to miscarriage, selective termination, stillbirth, neonatal death, sudden infant death, or accidental death. In addition to information given on the page, there is a SPALS list people can join. spals.com